Close Encounter with Plaquenil

Cutaneous Lupus was the diagnosis that my dermatologist came back with after doing a biopsy of my scalp. I had gone to him after a persistent itch morphed from minor annoyance to a major preoccupation and finally forced me to act. At first, I was not sure how serious of an ailment it was till he referred me to a specialist at The Hospital of the University of Pennsylvania.  My wife and daughter calmed me down, as Lupus was not yet confirmed and there were medicines available to treat it.  Even then, a possible diagnosis of Cutaneous Lupus got me all worked up. As a confirmed hypochondriac, who has his WebMD on speed-dial (bookmarked), I needed all my powers of restraint from  spending hours on the internet researching this.

Based on my dermatologist’s  referral we were able to get a quick appointment with the specialist at Penn.  At the appointment, she and her team took their time to analyze the earlier biopsy results and ordered their own specific tests/biopsy. After a few weeks, at the second appointment she narrowed the diagnosis  down to Lichenoid Dermatitis, and planned to start me on Plaquenil. Yes, this is the same Plaquenil (Hydroxychloroquine) that is currently being touted as the possible miracle cure for the CoronaVirus (COVID-19) pandemic.

One of the possible side effects of long term use of Plaquenil is eye damage leading to loss of vision. Because of this, the doctor asked me to have my eyes checked out by the ophthalmologist to establish a baseline before starting the medicine. While I was starting to accept the diagnosis and the prognosis so far, the seriousness of this medicine and its potential side effects rattled me! On the way back from the ophthalmologist, Uma reiterated her previous theory that maybe all this was due to the use of hair dyes and that I should stop using them. I had dismissed this earlier – thinking that she was just jealous of my youthful looks.  Finally, because of her persistence, I stopped coloring my hair (just to prove her wrong, of course 🙂 ). After a month or so, the itching stopped COMPLETELY! The sores on my scalp gradually healed!

Phew! That was close! If it weren’t for Uma’s idea and insistence that I stop the coloring, I could have gone blind – a ‘young-looking’ blind guy,  instead of the George Clooney look-alike (with the salt-n-pepper coiffure) that I am today!  🙂

Modeling “Just For Men”                       Au Naturel

You are probably eager to get the name of the hair dye that caused all this angst.  I had used “Just for Men” for several years before switching to “Indica Easy Hair Colour” based on the recommendation of a dermatologist (who said this was more natural). The problem started when I used this brand. After I stopped using it, the problem got resolved. Then after several months, I was tempted to go back to “Just for Men”, to see  if the issue was limited to that original Indian brand. Well, guess what? The exact same problem was back! So, essentially, I was allergic to an ingredient that was common to all these hair dyes.

The takeaways from this experience (in no particular order):

  1. Always get 2nd and 3rd opinions for any major diagnosis
  2. Forget the George Clooney look, I really should have just shaved my head and gone with the Vin Diesel look
  3. How many people would I have fooled with a wig or toupee?
  4. In order to have harmony in your matrimony, always listen to your wife and do what she recommends (and be prepared for “I told you so” for years…)
  5. If I had not goofed off in high school and worked hard, I might have become a  dermatologist myself! Oh well…
  6. Beware of the side effects of all medicines. DO NOT ignore them! We have smart scientists. I wish they would come up with better side effects. For e.g.: How about an erectile dysfunction drug that reduces belly fat and fixes hair loss (based on the targeted users of this drug)?

 

Author: Yash

I immigrated to the US in 1983 from India. I feel that I have been here long enough to not be called FOB (Fresh-off-the-Boat) by my kids. But I guess they seem to have some other standards which involve pronouncing words like "Vote" ,"Vending" and "Video" properly - which I guess I will never achieve (because of my 21 years in India) - so, I am going to pass myself as that Indian with an "exotic" accent!! My interests : WRITING - Just realized that most of my work so far has been Nostalgia-centric. I enjoy this genre and feel it's an un-ending well that I can draw from. As a matter of fact, this right here is fresh nostalgia for 10 years down the road!! (-: GOLF - I am terrible at it and it's a damn frustrating game, but I still love it ("painful pleasure"). One of these days I will actually take lessons so that I wont embarrass myself too much on the golf course. As long as there are golf courses around here (with low standards) that would allow me to play - I will play and enjoy golf!! STAND-UP - I have started dabbling (performing) in stand-up comedy recently and am loving the feedback I have been getting! I am going to attribute this newfound hobby to mid-life crisis! :-) (as an alternative to a toupee or a red sports car or a girlfriend-on-the-side!!). Here's clip of my very first performance on April 14th 2019: https://www.youtube.com/watch?v=ScMLgRAGyNs&feature=youtu.be MUSIC - I am a huge fan of Shakti (John McLaughlin, Zakir Hussain, Vinayakram, L.Shankar) as well as their later avatar - "Remember Shakti" (John McLaughlin, Zakir Hussain, Selva Ganesh, Mandolin Sreenivas, Shankar Mahadevan). Thoroughly enjoyed the two live concerts that I attended of this fusion group. I enjoy Hindustani and Carnatic classical instrumental music. YOUTUBE - YouTube has an unbelievable amount of entertainment from which you can draw your specific narrow niche!! In my case - these areas happen to be - street foods from various parts of the world, Indian classical music, debates about religion & belief, Indian Classical Music played by non Indian (e.g. Ukrainians doing wonderful Bharatanatyam, a French lady performing amazingly in a Carnatic Concert, a Chinese lady teaching Bharatanatyam in China etc.)

One thought on “Close Encounter with Plaquenil”

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s